Those words were written so big (or what seemed to be the biggest letters I ever read) right on top of Maelee's chart....well the first page anyways. Monday I took Maelee to get her velcro replaced on her SMO braces again.....no idea what this child is doing but the velcro just rips in half randomly! While in the room having the technician adjust and check fitting on her feet he opened her chart and right there were those words.....but what really stuck out to me was LIMITATIONS.
How dare they write that, how dare they say that about my sweet baby, how dare they put it there for me to see. I know what the levels are for gross motor function, I knew she of course fell somewhere on it, and even in level two, but limitations. One word really bothered me about the whole thing, one stupid word.
Yes, she uses braces, has difficutly balancing, etc. but that is ok. What she doesn't have is limitations on how much she fights, her determination, love, hope, strength, and resilience. These aren't things no one can limit her on, no one can take away and she definitely is going to continue to share them with the world one day at a time.
She is not limited on the possibilities in life, in her dreams, and all the greatness she has and will achieve. So she may walk a little different, move a little different, tire very easily but those things are nothing compared to her limitless love for life!
I always find myself aggravated at the things I read. When I read evaluations and it states Maelee is grasping like a 9 month old....I get mad and aggravated. But then it hits me like a ton of bricks! What an accomplishment. There in plain black ink it says she used her left hand without being prompted!!!!! OMG!!! Those are words I had never read before, who cares about the stupid month level, my baby used her hand to pick up things on her left side with no cues 3 out of 4 times during that evaluation!!! Take that limitations.
My baby walks up the stair with a rail, will go up with her left if she can use both hands to pull up on, she WALKS!! Take that limitations. My sweet miracle is using words, even phrases, and learning to communicate every day!! Take that Limitations.
So the next time I see this crazy word I am going to say to myself I wonder how she will defy odds, beat the "expected" and truly show those "limitations" they mean absolutely nothing!!!!
My sweet peanut is a miracle and she is showing everyone her limits in life are endless!!!! :)
No comments:
Post a Comment