Cerebral Palsy will Not Change Maelee

Monday is a day that we were dreading, it was an appointment we did not want to go to, and the words we were hoping to never hear came out of Maelee's neurologist's mouth. "Your daughter has Mild Left Hemiplegic Cerebral Palsy......."

We knew that this outcome may happen, we had done the research, gotten Maelee the best therapy possible, and even enrolled her in school for the fall. But hearing these words made it real. Our daughter has CP and there is nothing we can do to change that fact now. I would be lying if I said I didn't feel guilty, if I didn't think what else could I have done to change this outcome, or maybe we should have gotten help sooner. 

Maelee is starting to show wonderful improvements with therapy and her neurologist believes she has  wonderful outcomes ahead of her. It won't be easy and we have no way to know how this will affect her as she grows and learns, all we can do is help her with everything we have.  Her left arm and leg are weaker and she has hypertonia. Some days are hard, some days are alright. Many people will look at Maelee and think there is nothing wrong with her.  Many will question the diagnosis but if I could take a video of where we started to where we are now it is a world of difference. Therapy is Maelee's treatment for both her CP and sensory concerns. 

There is no cure for CP just treating the symptoms.  She will be continuing therapy and we are looking into getting extra therapy once we find out if she is enrolled in school this fall.  Our counter in the kitchen has turned into a file cabinet and my cell phone is filled with phone numbers....but I truly would not have it any other way. I am blessed to be home with Maelee right now, to be able to be her advocate through it all, and to see her progress each step of the way is life changing.

There has never been a day since Maelee arrived that we haven't been thankful for the blessing in our lives. Her having CP will not change that, a label will not change our girl. Maelee may have CP and she may have some sensory processing problems but she is Maelee and we don't know her any other way. She is our baby girl!  There is no diagnosis or label that will take that away from her- we won't allow it and will fight with everything we have to keep her world happy and filled with love. 

Maelee is our miracle and the center of our world! She is the most loving, kind, adorable, and happy little peanut you will ever meet!

Maelee acting silly in the morning! :)