Maelee is 18 months today!!! 1 1/2 years!!!
I can't even believe how fast time has gone! She is becoming this amazing little girl every day who loves her babies, anything princess, and wants her Momma every second of the day. We have celebrated every small step, every milestone, every second so much that Maelee now claps for everyone and everything.....even when it's not required! :) She feels praise is as important as we do!
But with all this celebrating and excitement I can't help but find myself a little overwhelmed that we are at the half way point.......
3.....3 is the age we were given to try and get her development where is needed to be. 3 is where 30% of children with mild CP do not have many noticeable characteristics anymore. 3 is when their little brains turn off from this great development land and we have to pack it all in before then. 3 is when early intervention ends. 3.....is only 18 months from now....1 1/2 years.......
Maelee is adding speech therapy to her weekly regimen this week and with that we will hopefully figure out what this "Maelee language" is all about! I absolutely love her babbles but her frustration is just so pitiful when she needs something. As her Momma I should know, I should be able to figure it out, and all I can do is smile and say "Oh really?" because I have absolutely no clue what she is talking about 98% of the time.
Maelee was fitted for SMO braces for her ankles. These past 2 weeks she has gone face and head first into concrete, cement, and really anything hard you can think of. Her PT said it best, "The more she is trying to do the more apparent her weakness is becoming". I hadn't really thought of it like that until it was said out loud but that is 100% correct....Maelee wants to run, climb, and do all the other crazy toddler things.....and I'm sure she would love to do them without her face planted on the floor! The saddest part is that she does not feel pain the way you or I do, for her to cry she has to hit really hard. There are times when I see her scratched, bruised, or standing with her fingers stuck in a drawer and most children would be screaming but not our Maelee. She smiles the majority of the time even when I would be crying. It is sad. I worry she will get hurt seriously one day. We are hoping these braces will help provide the stabilization she is needing and help align her feet/legs the correct way.
March marks one year since Maelee began her journey with PT and OT. I am amazed everyday as I look back and see how far she has come. Some days are hard and I know she is tired but she is a fighter. I would be lying if I said how much I enjoyed the running.....There are many times I would love nothing more than to stay home with my sweet Maelee and have a "typical" day. But this is our "Normal" life and after a year it's just what we do. Monday-Friday have become filled with appointments, school, play therapy, OT, PT, now ST, kindermusik, and the occasional lunch out if we can squeeze it in! :) It's exhausting and overwhelming but when I look back on photos of Maelee it is all worth it. She is my child and there is nothing I wouldn't do for her!
Maelee was not able to place feet flat on floor at the beginning or use her left side without cues.....a huge sign something was not right.
We have been blessed with an amazing group of therapists who have helped along the way. Our PT has been the same since last March when therapy began and I am so thankful to have her in Maelee's life. :)
Just Wait and See what this little girl will achieve!!!!
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