Update on our Peanut :)

Time gets away from me and I have been a terrible blogger lately...that is something I hope to fix in the coming year!

An update on Maelee: Since I last wrote she has had the flu, pneumonia, bronchiolitis, and an ear infection.....gotta love this time of year. She had a 24 hour eeg done to check for seizures...thankfully it was negative. Maelee continues to do the crazy movements in her sleep so we will be taking her to a sleep specialist in January. After the last visit with Maelee's neuro he was very concerned that her reflexes were different in both sides and she was showing her tone differences, so an MRI was ordered.

The MRI was done under general anesthesia and we were a mess waiting the LONG 45 minutes to see her again! We got the best results ever yet the most aggravating results ever....NORMAL! I am so happy that there is nothing major wrong with my sweet baby girl's brain. Her neurologist stated that it may be microscopic and will not show up at this time and a repeat scan will need to be done at a later date (we would rather skip that and just move forward). Having no known cause for Maelee having mild CP is hard but we are coming to terms with it. She is making amazing progress in all her therapies and we are so proud of her.

Over the past few weeks she has been having a few more sensory meltdowns than before so we are adjusting to this and doing our best to prevent, but any sensory parent knows this is a roller coaster you can't prevent you just have to ride out. Her communication is causing frustration. She talks.....we just don't understand. I don't speak Maelee and it breaks my heart. She gets to the point where she is so frustrated it results in a meltdown of head banging and biting....no calming will help. We are in the process of starting to use the iPad to help with communication along with continuing to use sign language.

Maelee is doing great in school! She is starting to socialize better with her peers and is doing great in play therapy! This has been one of the best decisions we made for her. She is learning to be more independent (which is breaking my heart)! My baby is now a toddler! I can't even believe I am writing that.......TODDLER!

We will be continuing her PT once a week! She is doing so good! She started wearing hip helpers to hold her hips and help build her muscle strength up. They help as long as they don't fall down- she has such short legs. :) She will also continue her OT once a week for her fine motor and sensory needs. She just got a new OT as her old one moved. Her new OT seems to really be interested in helping with Maelee and always has suggestions even about the littlest things! Can't wait to keep working with both of them on our little girl! Maelee will be in school two days a week with play therapy and they will also be working on speech with her until we can get her a speech evaluation done for communication.

Reading that I realize she is a busy little girl! When Maelee is not doing therapy she is a typical little girl! She loves her babies and loves to give kisses! We are so blessed by this sweet girl! I can't wait to see what the next year will bring in our lives!