Test of Patience

I wanted to write a post and just couldn't get started....well after a quick visit to Facebook and reading a wonderful poem that was posted I was inspired....

Patience is something that doesn't come easy for anyone, it is not something we are born with and it surely is not something that comes easy day to day. There are times in my life I have wondered if I would ever learn what patience was. I used to sit in the back seat of the car and ask "Are we there yet"....wait I still ask that.

When Maelee was born early and place in the NICU the test was there. We learned to wait and stop questioning. We learned to let God work his magic and heal our baby on his time. And when we brought her home I thought we had this patience thing under control. Well I was so wrong.

Having a baby is hard as any new parent will tell you. It is a huge change in your life, it is the biggest blessing you could ever ask for but it comes with a life altering change you sometimes can't imagine. Maelee however comes with special concerns that require extra patience and extra care.

We have watched and waited without losing our patience as she met her developmental goals either on time or a delayed. We have watched and waited with the diagnosing of her CP and now the evaluating for possible seizures...and still I have patience with that.

But what I think I am losing my patience with is all the sensory things.....My child spent last night banging her head on the headboard....Why? I have no clue! I can't explain it....she doesn't cry....she does it rhythmically and then goes back to sleep. She sometimes bangs her feet the same way, whatever she is in the mood for I guess. Then there are the nights Lee and I have to place our arms on her and hold her down to put her to sleep....most children would cry from this- not Maelee! She stops crying and goes to sleep. I think we are in the need of a weighted blanket at this point. We have had to buy new shoes this past week since she threw one out the door at Wal-Mart....refusing to wear it any longer....those are the days that test my patience. :)

So I will continue to ask for guidance with patience daily and look for answers to help my sweet peanut! And when all else fails I will laugh! :) There is nothing more entertaining than losing a shoe in the Wal-Mart parking lot!

Maelee is a unique child, she is a blessing, a miracle, and has been made with greatness! And for that I have patience.