Friday, October 18, 2013

Quick update and cute photos!!

Finding time to blog with a 2 year old is sometimes challenging. I realized I hadn't written an update in a little while so it was time.

Maelee is doing amazing! She is talking, and by talking I mean actual words we can understand at least 50% of the time!! This is a huge achievement. We went through many months of frustration and confusion over her needs and what she was trying to say.

Maelee had been fitted for a Spio Compression shirt earlier this month and it has been a wonderful purchase! Her attention is that of a 2 year old plus sensory procession difficulty...which means sometimes she is everywhere. It has helped with her movements and spatial awareness. The shirt is hot pink and black and has velcro for compression needs. She wears it to therapy, school, and at home during times we are doing things that require concentration or working towards therapy goals.  She loves deep pressure so this is the perfect tool for her.

Maelee received her new pairs of glasses and has been keeping them on for a couple of weeks now! Her plastic frames are cute but she would get annoyed when they slid at all so we decided to go with pink metal frames with wire to wrap around ears for comfort. She looks too cute and we can tell a huge difference in her sight and squinting. We have a follow up in a few weeks with the eye doctor and am so happy we will be able to say she is wearing them.....for a while there we were worried she would need other interventions but hopefully these glasses are doing the trick.

We have decided to hold off on the developmental/behavioral pediatrician at this time. We want to let her keep working on her current goals and while she is doing so good we don't want to introduce anyone else in her life. She will be following up with her sleep specialist in the coming months and hopefully we won't need another sleep study....but I don't know how promising that will be.


Maelee has made some amazing strides over the past few months and I cannot wait to see what happens in the coming months and years. God entrusted us with this miracle, this precious child. And we will live each day to help her grow, learn, and become an amazing person!!! :) Things in our life our changing but we just know Maelee will continue to show us love and how much heart she has in all she does!!! :)







Thursday, October 10, 2013

Thank you for helping us along this journey!

When I began this blog it was a way to write everything down so one day Maelee would know her whole story. But it seems that over the past two years this blog has helped us find answers, meet many amazing people, help others, and really celebrate our daughter's life!

So many things change in life, whether it's a quick change or one that takes a while. Maelee has changed so much over the past two years. She is growing into her own person with a wonderful personality and a heart that is filled with love. She has physically met goals, exceeded expectations, and really thrived in all her therapies.

The support that has been given to us by not only friends and close family but also strangers is amazing! Maelee will grow into nothing but greatness and we love everyone for following along this journey called life! :)